60 seconds with ... author Deborah Shouse

Share this article:
Deborah Shouse, author of "Love in the Land of Dementia"
Deborah Shouse, author of "Love in the Land of Dementia"

Q: How did the book, which chronicles your mother's Alzheimer's disease, come to be?

A: I started journaling and writing down what happened every time we were together. [I asked] what is good about this situation and where are the gifts and blessings? How can I stay connected with my mom through this journey? 

Q: How is the book a tool?

A: I've had people tell me that it's given them insight into what happens when a person in a family has Alzheimer's and what the family goes through. We once had an opportunity to read to nurses and long-term care administrators. They laughed at a lot of different places because it was true. I was a long-term care administrator years ago. It was one of my earliest careers. I had an administrator's viewpoint then.

Q: Did this influence how you felt about your mother's care?

A: Yes. I understood there would be moments when things aren't perfect. I learned a lot from other families and staff. I felt really lucky in that people who were caring for my mom were loving, connected people. They loved my mom for who she was. They see, “Here is a lovely woman with silvery hair who laughs when I walk into the room.” That helped me: Long-term care staff sees your loved one as they are right now.

“Love in the Land of Dementia” will be released Nov. 12.

Share this article:

More in News

Skilled nursing facilities with poor quality ratings do not readmit more patients to hospitals, researchers find

Skilled nursing facilities with poor quality ratings do ...

Low-quality and high-quality skilled nursing facilities readmit about the same proportion of residents to hospitals, suggest research findings recently published in the American Journal of Medical Quality.

Cipro and related antibiotics increase MRSA risk in long-term care facilities, study ...

Long-term care residents on a fluoroquinolone antibiotic such as Cipro are at an increased risk for methicillin-resistant Staphylococcus aureus, researchers in France have found.

Jonathan Blum, who oversaw long-term care reforms, resigns as head of Medicare

The nation's top Medicare official, Jonathan Blum, is leaving his post next month, news outlets reported Tuesday. Blum became a familiar figure to long-term care providers through Open Door Forum calls and other outreach efforts during his five-year tenure, as he guided implementation of Medicare ...